abstract |
African Americans have historically engaged in advance care planning (ACP) at lower rates than
other racial groups, contributing to disparities in end-of-life care. This dissertation examines
African Americans' attitudes toward end-of-life care in Union County, New Jersey, exploring the
cultural, historical, religious, and socioeconomic factors that shape decision-making. The study
aims to identify barriers to ACP participation and evaluate community-based interventions
designed to increase engagement.
A qualitative research approach was employed, utilizing semi-structured interviews with African
American adults from diverse backgrounds. Data analysis, conducted through thematic analysis
using NVivo software, revealed key factors influencing ACP decisions, including medical
mistrust rooted in historical injustices, the central role of religious beliefs, family-centered
decision-making, and financial concerns. Participants expressed discomfort with discussing
death, emphasizing the importance of family consensus and spiritual guidance in healthcare
decisions.
A community-based intervention was implemented to address these challenges, incorporating
educational workshops led by healthcare professionals, clergy, and community leaders. These
sessions aimed to increase awareness, dispel misconceptions, and provide culturally relevant
ACP resources. Post-intervention assessments demonstrated a positive shift in participants'
knowledge, attitudes, and willingness to engage in ACP discussions. The study highlights the
effectiveness of tailored, culturally competent approaches in fostering ACP engagement within
African American communities.
The findings underscore the need for healthcare policies that prioritize cultural competence,
community engagement, and systemic reforms to enhance ACP accessibility. Addressing
historical mistrust, religious influences, and socioeconomic barriers, this research provides a
framework for reducing disparities in end-of-life care. Future research should explore the long
term sustainability of such interventions and their broader applicability to African American
populations nationwide.
This study contributes to the growing literature on health equity and end-of-life care, advocating
for patient-centered, culturally informed ACP initiatives to improve healthcare outcomes.
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