Drew University Library : University Archives : Theses and Dissertations
    
author Melinna C. Sanchez
title Protecting Preimplantation Genetic Testing Patients: A Social Support Perspective
abstract Preimplantation genetic testing of monogenic disorder (PGT- M) is a relatively novel assisted reproductive technology that allows patients impacted by genetic disorders to select an embryo free of hereditary genetic disorder and conceive via in vitro fertilization. While outcomes for patients using PGT-M with IVF offspring seem promising, there are a multitude of factors that hinder patients' mental well-being and treatment adherence, specifically the intense isolation that is endured. This thesis uses available literature and data to argue that normative social support frameworks are effective but ultimately not tailored enough to promote a positive PGT-M patient experience. Social support would be more adequately sought through PGT-M concentrated support groups as they would unify patients experiencing a similar process. However, there is a deficiency in access for PGT-M patients. I advocate for the creation of concentrated PGT-M patient support groups as they administer an experience-conscious space that combats mental anguish, like isolation and depression, and promotes overall patient well-being and future use of PGT-M. Finally, utilizing the cultivation of PGT-M concentrated support groups, I encourage more widespread concentrated support group use to buffer the current inaccessibility for many who need mental health services.
school The College of Liberal Arts, Drew University
degree B.A. (2024)
advisor Phoebe Tang
committee Lisa Monetti
Monica Cantero—Exojo
full textMSanchez.pdf