|
author |
Melinna C. Sanchez
| title |
Protecting Preimplantation Genetic Testing Patients: A Social Support Perspective
| abstract |
Preimplantation genetic testing of monogenic disorder (PGT- M) is a relatively novel
assisted reproductive technology that allows patients impacted by genetic disorders to select an
embryo free of hereditary genetic disorder and conceive via in vitro fertilization. While outcomes
for patients using PGT-M with IVF offspring seem promising, there are a multitude of factors
that hinder patients' mental well-being and treatment adherence, specifically the intense isolation
that is endured. This thesis uses available literature and data to argue that normative social
support frameworks are effective but ultimately not tailored enough to promote a positive
PGT-M patient experience. Social support would be more adequately sought through PGT-M
concentrated support groups as they would unify patients experiencing a similar process.
However, there is a deficiency in access for PGT-M patients. I advocate for the creation of
concentrated PGT-M patient support groups as they administer an experience-conscious space
that combats mental anguish, like isolation and depression, and promotes overall patient
well-being and future use of PGT-M. Finally, utilizing the cultivation of PGT-M concentrated
support groups, I encourage more widespread concentrated support group use to buffer the
current inaccessibility for many who need mental health services.
| school |
The College of Liberal Arts, Drew University
| degree |
B.A. (2024)
|
advisor |
Phoebe Tang
|
committee |
Lisa Monetti Monica Cantero—Exojo
|
full text | MSanchez.pdf |
| |